The Orkambi Debate at Westminster Hall

About 60 MPs attend debate at Westminster Hall debate on 19 March 2018

Introduction On 19th March 2018, a debate was held in Westminster Hall to debate Orkambi’s®1 availability on the NHS. Watch the debate here (Parliamentlive.tv, available until approximately 26th March 2018). A transcript is also available (Hansard.parliament.uk. I believe this link will work permanently). The debate was attended by approximately 60 MPs, but attendance at Westminster Hall debates are normally attended by under 15 MPs. The debate was in response to ePetition 209455 (parliament. [Read More]

Orkambi And Me

It’s happened, I’m on ORKAMBI®. Those readers who are: Eating Of a sensitive nature to medical words about body fluids may wish to consider either avoiding this article or returning later. It is with mixed feelings I write this post. Today I started ORKAMBI® [orkambi.com], the drug that is targeted at Cfers (A person with CF) with my genotype ΔF508 (Also known as F508Δ.) It is the most common of Cystic Fibrosis (CF) genotypes in the UK, and possibly worldwide. [Read More]

Site update - the update!

No excuse, no excuses. This is more of an explanation and apology than an excuse (Although I am sure there are some who see them as something highly similar!) The update of davidthorne.net has been delayed. I’ve finally commissioned a designer, and we’re going to be working on the new design by January (The delay is mine, I was in hospital over late October and half of November). The content reorganisation is mapped out (As soon as I work out a good way to share it I will, I intend to open source as much of the process I use as possible), the code I want to write for displaying my CV [github. [Read More]

Acquia Certification

Some links have been stripped from this article due to age and inaccessibility. So in March 2014 Acquia (The company run by Dries Buytaert [buytaert.net], the project founder of Drupal) launched it’s certification program [acquia.com]. Whilst I am not necessarily an advocate of having a certification for every PHP framework or CMS that exsists, but I do feel that Drupal did need something. A little History As is the case with a lot of PHP frameworks or open source projects, you find a large variety of abilities irrespective of experience level as a PHP developer. [Read More]